Britney had a very hard night and day today. Her blood counts dropped a lot last night. They thought it was a GI bleed but the GI doctors didn't think so. Luckily with 3 units of blood overnight she was stable and kept her blood counts stable all night and day. She was taken off all sedation and pain medication all night and morning for the neurologist to come. She was in excruciating pain when she tightened her mouth because of her teeth or when they repositioned her. She looked at me many times. We have seen many movements we have put in our blog that seem very purposeful to us. Neurology came by at 9:00am and told me they are signing off because they do not see any purposeful movements. They have only been by 2-3X in the past week for about 5-10 minutes per visit. I told them what they see is only a snapshot in time. They were very abrupt, and stated her chances without any purposeful movements is very close to zero to come back to us. It was very frustrating. I asked her primary team to keep her comfortable because they didn't need to torture her anymore for the sake of the neurologists. It still took about 4 hours to get her pain under control and to help her fall back asleep. They are trying to track down a dentist who will pull out her teeth since the other one went on vacation and didn't do a thing for her. Britney's best friend in Wisconsin's husband is a oral surgery resident and they offered to have him fly down to help her not suffer so much but he can't do anything without hospital privileges. Neither can his dad who is a oral surgeon in a different state who they also offered to fly out. She will have to suffer with her teeth until they get someone to come here. Today she also had a CT scan to look at her lungs, and the fluid collection behind her right kidney and to see if she was having any bleeding anywhere. The left lung is very infected and has a lot of blood clot keeping her from getting better. A surgery is scheduled Monday to clean out the clots in her lung and help her heal. The time until then they will work on getting her well enough for surgery. She is stable and comfortable since they got her pain under control a few hours ago. The primary team is great and said they will go all out to save her. It is way to early for us to give up on her. My sister in law survived a severe head bleed and was written off for dead many times. We don't want her to continue suffering but want to give her the chance she deserves at the same time. We have felt so much peace and hope. Ever since the night she was placed on ECMO and we thought she was gone I have such a strong thought and feeling come to my mind and heart when I start to loose hope. The story of Lazarus has popped into my mind so many times with such peace. If God wants to take her home to him I pray it will be soon and without suffering but if he wants to give her back to us I know he can. Sorry for such an emotional post. So many of you are so emotionally invested in her and our family. Despite the horrible tragedy this is to all of us we are not our tragedey's. We are filled with a peace that is well beyond us and has kept our family going. What ever the outcome of the next few weeks there will be a great life to live. She will be our angel in this life and the next. Keep praying for her to get better, and to be comfortable. Thank you for all of your love.
Have a great night,
John