Brintey did great again with her swallow evaluation and has had the cuff down on her trach so I asked if she could have a valve to give her the chance to start speaking and she just got it. She has seemed like she tried to talk many times over the past few weeks. Her speech therapist said it is common to make some sounds first and then maybe one word sentences. She has already made a lot of sounds since getting it in. She has some gauze n her lower lip that makes hit hard for her to move her lips because her lip is still healing. Her vocal muscles need some exercise and it will take lots of brain coordination to speak more complexly. It will be a process, but we are very excited she is progressing so much. She has been looking around a lot, and smiled again today when we were talking about the kids. She closed her eyes when her therapist asked her to. She has therapy 3X per day (speech, occupational, and physical therapy). The rep from the splinting company came today. Her braces in Tucson got sent back to the home office because they didn't have the right address to ship them to so we lost another week and a half and she has lost some more range of motion in her left arm. She will be getting custom braces on Tuesday or Wednesday. Sorry I haven't posted everyday. I just wanted to keep everyone up to date on any changes and didn't want to bore anyone with more of the same. She has been very comfortable with some periods where her spasms are increasing causing bad pain. These periods are getting less frequent and she is comfortable most of the time. Her nurses are very good at controlling her pain, and we are doing a lot of heat packs and massage. The constant stretches in therapy also keeps her pain down. I'll post again with any changes.
John
Friday, August 21, 2009
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Hello.... Great to hear all is good and the nurses are great too... Jan, Have been calling you and getting a voice mail saying that you havent set up whatever.... wish I could swap with you for your Broncos game..but am in VA then....wondered if I could join you on a visit to Britney... let me know... # is 3039498661.. thinking of you all... work mon/tues/sat this week...
ReplyDeleteBritney.. keep moving.. remember the little train that could.... toot,toot(has Jan told you I'm a bit dappy?)..all the way up the hill.... take care...
Sally
I always like to read positive news about you Britney. I know you love your family so much and want to be with them. You are in such good hands there and I know it puts John and the rest of your family and friends at peace to know that. Keep up the good fight! We miss you. I often drive down 86th Street and it always brings back such good memories of us being next door neighbors. You were always willing to help when I needed it and Eli always enjoyed being around you and Jonas. We'll miss seeing you on the playground at McKinley, but I know it's only a matter of time until you are standing on a playground again surrounded by your kids!! Hang in there. Love, Brenda Gorenc
ReplyDeleteIt was good to see you, Jonah, and Vera at church today. I hope as you head back to Tucson you know you, Britney and the kids are in our thoughts and prayers. I look forward to visiting Britney sometime soon. Thanks for keeping us up to date and informed. Sara & Todd Stong
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